TALOC Special Persons Association Pre-Christmas Party Meeting


When I had officially gotten my PWD ID, I was informed to join the pre-Christmas party meeting that the barangay PWD members were about to have. To make a long story short, it was the first time ever in my life to have been with the company of special persons like myself in a sort of an official setting.

Much to my surprise, they were a bunch of great people. Some were hunchbacks. Others were amputees in crutches.  Another amputee was in a wheelchair. Most had cleft palates and polio victims. They were exactly the opposite of the pathetic, helpless souls that are supposed to be in the closet 24/7 instead of out in the sun having a great, happy time.

Well indeed God is good; He has His special way of endowing His special children with the grace of joy that’s almost surreal. I can’t wait to see them again for the big day-The Christmas party!

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DISTURBING RARITY REALITY!


http://wereblog.com/12-year-old-boy-with-a-rare-condition-with-his-head-hang-180-degrees

This is one of the reasons why my blog, Special Persons are People, Too! got conceived.

It’s not much really as I have failed to maintain it thinking it was a futile attempt at publicizing what my thoughts were regarding things, other special persons, and my pathetic quest to know more about my congenital defect. I did not have the absolute clarity as to the purpose of my putting up a blog. I felt it was useless; and my thoughts were: ‘Who am kidding? What in the world was I thinking putting up a blog nobody wants to read? To think I’m not an accomplished writer! Who cares about things like this?’

After several years of hiatus, I finally found better motivations not only to keep my blog afloat, but above all, to make something out of it as an instrument in service of humanity. On top of writing and sharing my thoughts and that of others’, I shall try to promote better understanding and awareness about us as God’s special creatures, to disseminate information as to the legitimacy and morality of our rlghts and privileges as also members of the society who ought not to be discriminated, oppressed, persecuted, looked down upon, bullied, and deprived of our basic needs having been borne to a society that should respect and celebrate those who are ‘slightly different’. It’s gonna be one tough journey; but we all have to start somewhere.

I pray for wisdom and resources for whatever purpose The Universe has drafted and designed for me.

THE PHYSICALLY CHALLENGED: a race forgotten, misconstrued


We call them freaks. We pay money to see them make fools of themselves.

We make fun of them as if their feelings don’t count. As kids, we harass them the first

chance we get. Because we have no tolerance for the askew, the crooked, the odd and

the physically gross or absurd. We think of them as non-human. Maltreatment and

injustice are only a common form of torment. .. (in this era wherein ‘beautiful’ is

defined by the perfection as to physicality, elegance and sophistication,and largely

depends on the carats of gems on the bejeweled class of the society where the rich and

the famous choke on over dosage of fame and overwhelming wealth).

In an age and time where everything gets fixed or “converted” into

something new and beautiful (at the right price) in the ultimate quest for the

preservation of youth and for aesthetics’ sake, some of us born rather ‘differently’ seems

to have been thrown in the backstage. Amidst the clamor and din of this fast and furious

rat race, these least of our brethren have been, since time immemorial, considered

second class citizens.

 

We tend to forget that amongst us, between the living and the dead, there

thrives a breathing, feeling faction of our race that silently, in the shadows, desperately

struggles to outlive a cruel, indifferent civilization where only the best, the brightest

and the most able have the privilege to rise up and hear the bells.

What does it mean to be congenitally defective today? True, more and more

consideration for the physically disabled and/or “special people” have never been better

with the rise in growing social awareness for the physically challenged members of our

society. Special seats, lanes, marked lavatories, especially designed walkways and

tracks, custom- made prosthetics, gadgets and what-have-yous became commonplace in

our feeble attempt to show them we care and that they count.

 

Truth is, these attempts are just to quench the guilt deep inside us. We

should be convicted and hanged for enjoying so much while they suffer in the shadows,

out of the limelight, unwillingly bathing in shame at the mercy of the bonds of

insecurity, hopelessness, envy and hate-forever stuck, forever needy and forever

irrelevant and useless. We should be fined and punished for the awesome feeling after a

nature trail hike where we got the chance to bask in the glory of seeing the world from a

different light and being able to fully experience all of its wonders. We should be

tortured and made to suffer for the awesome sights and sounds that travel makes

possible.

 

In the end, nothing can ever make up or suffice even, for the feelings of

deprivations and the pain and suffering of the physically unfortunate. These are beyond

reimbursement. Nothing can ever make up for the torment, grief and the sorrow that

inability and disability gift wraps them with at birth.

 

But everything gets to be alright

when we are loved. The world seems better, brighter. To quote anew, LOVE is the KEY.

ADAMS-OLIVER VS AMNIOTIC BAND SYNDROME


Special people, like the mentally retarded and the physically disabled, in the olden days, were considered second class citizens who ought to keep out of sight.  Despicable and shameful, they were treated like animals, left to rot in oblivion to live out their lives in misery and suffering.  Whether they are indeed accidents of nature, borne of the scourge of  the gods, or some kind of genetic anomaly, one thing is for certain:  it’s not their fault how they turned out to be.

It has been a long time that I have been messing with the web, but it never occurred to me to seek out people with the same condition, or to even just research about it. Having been born with a congenital defect, at 37 years old, it was just last week that I decided to explore the world where one-half of me is an endemic inhabitant.

Initially, I surfed, read, followed links, to no avail.  My oddity, so to speak, cannot be found. Images, images, images- my eyes watered and I burnt candles for nights-but, nada. The gross and the macabre were in front of me (thank God I only have this kind!);  my heart broke to see worse persons than I am.

Browsing for images yielded no positive result, so I turned to reading until my eyebags got swollen and my eyes bulged like burbots‘.  It’s so elusive- there must be something! What, I’m not even among the categories and types? Later, I realized that I had a hard time because I wasn’t using the right tags.  But how could I, since I myself was at a loss as to what my deformity was called like!

Finally, I got to Adams-Oliver Syndrome and then eventually to Amniotic Band Syndrome.  I could fit in to either of them, but I still need more time to delve deeper.  One fact, though;  whichever syndrome I get to ‘fit in’, I am the only one with this kind of foot defect.  For, NO TWO CASES ARE EVER ALIKE.

Consequently, I will be spending more time learning about my deficiency.  Prior to last week, I’ve never encountered both syndromes before.  I guess I didn’t really give much thought to my defect as much as I should have, in my feeble attempt to ‘belong’ with the masses. Nevertheless, I’m grateful for having had such understanding family and friends to have had the chance to be considered ‘normal’ in spite of what I truly am.

For that, I am very grateful;  and I feel truly blessed.

JASMINE GARCES


When Jasmine was born, everybody gave thanks for the wonderful gift of a new child in

the family. Like any other baby, she was cherubic and her smile never failed to warm the

heart.  She was the center of attention; a princess everyone adored and just can’t get

enough of.  So cute and cuddly!

When music emanates from the family radio, Jasmine gets carried away.  Music would signal a

moment of jolly good time-full of laughter and merriment. When Jasmine dances with

the music, (oh how good she can move- so flexible, so in time with the beat, so

inventive for moves) she’s awesome.  Music and dancing takes her to planes and

dimensions she alone understands. She’s taken by the music like a feather taken by

the soft wind. Time stops when she hears music or dances with it. Almost surreal,

almost sublime.

Jasmine’s congenital anomaly is rather chromosomal in nature. Persons with Down

Syndrome may vary in levels and thus their personalities differ.

The realization that a child is suffering from Down Syndrome can be devastating to the

parents. The best way to contend with it, is to accept it and give the child all the love,

care and understanding more than doubly afforded the typical child.

It has been observed and well-studied, that the majority of congenitally defective

individuals are very sensitive people. They are easily provoked, and the least

unintentional action may be easily taken as a threat or intimidation. They can

exaggerate reactions deliberately or without any much thought.

Persons afflicted with Down Syndrome, however, are mostly quiet, contented and

extremely happy. For Jasmine’s parents, they didn’t mind at all that their daughter was

different. They were proud of her in fact. She is sweet, loving, kind, graceful, easy and

above all, always happy. They love her as she is; they take her everywhere; people are

fond of her jovial, peaceful nature; and her being happy 99% of the time is very

infectious.

Being 18 years old now, Jasmine started to menstruate at 13, like any other girl. It was a

mess at first but later she had learned how to take care of herself when it comes every

month. She wouldn’t even bother anyone for a napkin; she buys it herself and fends for

her well-being during the period.

She is also amazingly more independent of others than most persons like her. She takes

a bath by herself, takes care of her baby nephews and nieces, sets the table and eats by

herself, and even washes the dishes and throws away the garbage and does all other simple

house chores.

Antics cannot be avoided. For these people, they never run out of silly, cute, and odd

mischiefs. Keys are not where they are anymore, the food disappears and appears on

the table; wallets, all sorts, are in the second drawer of her cabinet; slippers don’t have

their pairs anymore, and a bear hug, a quick kiss or sudden pat in the backs can startle

members of the family; and a huge, warm, hearty laughing streak would ensue for sure.

For Jasmine, her circumstances are the most ideal for someone like her. She can be

considered lucky-particularly in this part of the world. For, her lifetime is one with a

lot of love and understanding; one that has learned how it is to be truly loved in spite

of what she  ‘happened’ to be.

KYLA


I saw her on teevee today.
I almost thought, “how cruel God must be”.
I almost cried; seeing her was just like your heart was crushed.
Such fragile ‘thing’… It must be very hard for her mum…

Kyla was auditioning for a teevee show.

The show is the local equivalent of America’s Got Talent television program. She was auditioning! Before her turn to show-off, nobody would ever believe she was there for the screening. SCREENING!

Did you say, screening? Screening as in like auditioning? As in: a trial performance to determine suitability for a contest? A try-out? An elimination exercise?

Yes. And for a prestigious national television show, at that.

Because Kyla looked like she’s just a baby, you can never tell otherwise. Her mother carries her around. She doesn’t have the capacity or functionality to walk. Her legs couldn’t support her. All her extremities seemed very fragile, although her hands looked ‘normal’. I couldn’t see her legs and feet, though. She was wearing stockings. But I could clearly discern her legs’ length and how useless they are.

Kyla is 11 years old.

When it was her turn to ‘try-out’, she was on a chair. A microphone was already set up for her. She sang a song that made her get in. She did it! She’s gonna be joining in the contest proper! Bravo! Kudos!

Whatever the turn-out of the contest proper doesn’t matter. For, at this stage, it cannot be determined yet. But one thing is clear: her strength of spirit is amazing. The mere fact that she went through the eye of the needle is an extremely awesome feat.

Good luck, Kyla!

ABOUT ‘SPECIAL PERSONS ARE PEOPLE, TOO!’ BLOG


Special Persons are People, Too is a literary hub where everyone is welcome to interact with persons with congenital physical deformities or defects, give advice, offer opportunities, or just simply to give support and show they care.

Being provided a fantastic site you can call your own is simply irresistible.  Best of all, you can do whatever you want with it (for as long as you don’t go over the boundaries). It’s like winning the lottery;  a once-in-a-lifetime opportunity that you feel you have to really take care of and make the best of.

Thanks to the kindness of all the staff at wordpress.com and the community and other outfits that support them. Words can never suffice to show our gratefulness for these selfless people. Without them, Special Persons are People, Too could not have come into existence.

People like me-bloggers, authors/writers, companies, associations, and other organizations geared towards sharing and community interaction to foster goodwill among those who believe they can make a difference, now have a great avenue where they can impart insights and other important stuff to the world.  It’s simply awesome!

Here, we hope to discuss about, and share experiences of, people who have physical deformities- their adversities, exploits, and most of all, their TRIUMPHS over their misfortunes.

Also, we will be posting about Bacolod City as a gateway to extend a glimpse about where we hail from, and we hope to feature articles about individual persons, entire organizations, government agencies, and other professionals somehow akin to our city and our advocacy.

We’re a newbie in this endeavor, and whatever help we can get, we would appreciate it very much.  Kindly feel free to contact us for any suggestions, literary contributions, advice and other relevant things we need (like topics, articles, or links that can further help us improve).

Thank you.